Special needs mom fighting for diagnosis

I never wanted to be the mom of a special needs kid.  The idea and thought terrified me. Then I became very close with my cousin who one day just stop growing and no one knew why. He was like having a baby under the age of 1 for about 2-3 years. And I watched what my Aunt was going through and I definitely didn’t want it then. I had a perfectly healthy daughter and that was how I wanted all my kids. But then I met my husband.

I have a blended family. My oldest daughter and youngest daughter came from my husbands previous marriage. The mom got into some trouble and lost custody. The day I moved in, she quit coming around or calling much. Eventually she signed over her rights and I adopted the girls as my own. My middle and youngest daughter are only 5 months apart. But they are mentally and physically years apart. When I came into the picture Bri would talk but you couldn’t understand her at all. Only 3 words came out clearly. She was having a hard time potty training. Very small and petite in size compared to the other kids. It seemed like everything with Bri was on hyperspeed. And she was very impulsive and unaware of dangers.

We originally got the speech diagnosis and started her in an intense pre-k with tons of speech therapy. About 2 years later, we got the ADHD diagnosis. But within 6 months of being on meds, she turned violent and out of control. My little sweet petite girl could bust my lip, punch a hole in the wall and break a window all in one day. And yes she was only 6 or 7. From there we got the diagnosis of mood disorder. She has been on meds ever since. But I kept saying there was something more. That something wasn’t right. I homeschooled for a couple of years until her meds weren’t working and she became a danger to myself and the newborn in the house at the time. We decided that we needed a break and public school would give us that. But in school she was struggling. Inevitably getting in a fight because and I quote “the other girl wanted to”. She didn’t have any social common sense in my opinion. She will talk to you like dirt and treat you like dirt but the minute you do it to her; your labeled as mean and she runs to her room crying which then goes into a temper tantrum. She doesn’t understand right from wrong or just doesn’t care. I am not sure. She struggles in school with making friends and being on her grade level. No one has an answer, a solution and just keeps passing her along!

I have been to therapist that have suggest locking her in a closet to talking to her like she is a baby. I have been to neurologist, endocrinologist, psychiatrist, psychologist and had many IQ test done. But finally I might have a light at the end of the 9 year battle! It took the 5th psychiatrist to listen and say whoa, i think she might be this instead. But finally there is hope. And the scary part is I have suspected it all along.

Asperger’s!

I am really hoping this is the answer. I am exhausted and beginning to lose my drive. But I can’t quit; I know that. But it just sucks going on this journey.

I will say that with everything I picked up with my daughter and cousin, I have learned a lot. I can look at someone at the restaurant and say he is autistic or listen to a friend share her worries about her child and say sounds like a sensory issue.

But it still is hard…….

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